I was inspired to give my blog this name after attending an Autism Conference featuring Dr. Paula Kluth.
http://www.paulakluth.com/ Her entire presentation about inclusive classrooms was absolutely amazing. She was able to take us to the student's point of view, which hasn't really been explored until now. Her ideas were insightful and thoughtful. I left feeling with renewed hope for my sweet son Tali
As a parent of a child recently diagnosed with Autism, I was overwhelmed with feelings of anguish, pain, bewilderment, and worry. Sure, I've worked with adults with Autism Spectrum Disorders (ASD) for over 8 years. I loved working with them. They were my students and partly of my family. Still, after work, I went home and was mom to my sons Adney (6 years old) and Tali (5 years old). As a parent, you want the world for your children. You want to see them grow and take their place in this big world. As I watched my sons grow, I imagine what their futures would be like. What aspirations they could have and what life has in store for them. In my daydreams, I could picture Adney becoming an astronaut or lawyer and Tali as an engineer or a doctor.
As time passed, I notice that Tali wasn't reaching his speech benchmarks. As a mother in denial, I would say, "He'll learn to speak soon!" or "Tali will grow out of it!" Moments became days, weeks, months and eventually years. As Tali completed his 4th birthday, I wondered if he'd ever be able to communicate his needs. Tali did use words like chocolate or sleep. He would repeat phrases he's heard but never his own words or thoughts. It was excruciating to watch my Tali try so hard to speak and nothing come. I know he's a bright, energetic, and loving little boy. It broke my heart to watch him struggle each day. I finally decided to put on my BIG GIRL PANTS and contact the school district for testing. Tali was tested and scored 1% overall. It was suggested that Tali start going to a special education preschool.
Throughout all the tests, Dr visits, and school Tali has always remained happy, active, and passionate. He truly loves his life. As I struggle to come to grips with having an autistic son, Tali has stayed positive and happy. He asks me every morning, "Mom Happy?" My answer is, "Yes, Tali mom happy!" Tali, then gives me a big smile and run way.
Dr. Paula Kluth co-authored a book entitled, Pedro's Whale. It's about a young autistic kid and his struggles to adapt to school. Pedro has a very special bond with his whale.Pedro was heartbroken when his teacher asked him to put away his whale. Pedro's teacher realizes that the whale helps Pedro do his best work. When the teacher allow Pedro to keep the whale, she realized that it helped Pedro as well as others in his class.
Until Tali can communicate with the world. I'm his stand in whale. The world of autism is spectacular. I'm blessed enough to have a front row seat. Tali like many other autistic children are able to see beyond what we think is "normal" to things that are beyond our reach. What does that world looks like? I'm excited to explore this world with Tali. For those who want to take this journey, sit, relax, and be ready to be amazed! I'm a mom and I'm proud to have an autistic son.